At just 15 months old, my parents discovered I was born with 22q—a revelation that left us stunned and overwhelmed. Until then, we had no inkling of any medical condition or genetic disorder. Surprisingly common yet vastly unheard of, 22q ranks as the second most prevalent genetic disorder after Down syndrome.
Eager to shed light on my condition, we're extending an invitation to our dearest friends and family to join us for an intimate stroll through a picturesque park. It's an opportunity to bond, learn, and understand how 22q shapes not just my life, but the lives of countless others navigating its challenges.
Here's a glimpse into my medical journey:
\- 22q Chromosome Deletion Syndrome
\- Epilepsy
\- Profound Bi-Lateral Hearing Loss
\- Hypotonia
\- gTube Dependency
\- Asthma
\- Dysphagia
\- Cognitive and Physical Delays
\- Scoliosis
Despite its prevalence, 22q remains elusive, often difficult to diagnose. With a frequency of 1 in 2,000 births and affecting 1 in 68 children with heart defects, raising awareness is paramount.
Join me on May 19, 2024, as we lace up our shoes and hit the trails to champion 22q awareness and raise crucial funds. Let's transform this virtual endeavor into a tangible reality, uniting our loved ones for a meaningful stroll through the park. Together, we can stride towards greater understanding and support for 22q.
~Jayce Reyna / Pete S. Reyna III & Rosa Valero
